Thursday, February 19, 2009

Good Things

Today was AWESOME!! Daddy came over in the morning, held me and read me a story before he went into work. He told me that I am the most popular 35 weeker he knows. Well...I don't think he knows any other 35 weekers but he did tell me of all the people who have been following the blog. It's really cool knowing that there are so many people who care about how well I am doing.

After daddy left for work, my nurses removed my replogle tube. You are probably saying replog..what?? Replogle (RE-POLE-GLE) tube is doctor speak for drainage tube. They used it to drain the icky stuff from my belly. Since I seem to be doing better, they pulled it out today. Gosh, it feels great to have that big tube out of my face. Hopefully, I never have the need for another replogle.

Since they pulled the tube, I am more free to be held by my daddy, Poppy, Mimis and Mamau. Daddy and I even got to Kangaroo today!! It has been waayyy too long since we have done that. Daddy said that there isn't a better place in the world to be than in a Kangaroo chair with his baby girl. That's ME!! I love it too. In fact, they placed me on Daddy's chest and I zonked out almost instantly and slept fantastically until the nurse put me back in bed.

Daddy snapped a photo of me (above) and forgot to turn off the flash. It startled me so bad that it gave me the hiccups. Thanks Dad. But he made it all better when he gave me my goodnight kisses. He even sings me a song that he and Mommy learned at Camp Boggy Creek. It goes a little something like this..."Gooood, goood night to you. The whhooolle niiiight through. May you dream of peace, looovve and hope. And may allll your dreams come true!!" Actually, that's the only verse he can remember but I like when he sings it to me.

The doctors continue to be happy with my progress. Just a few more days of antibiotics and IV fluids until they start feeding me again. I can not wait. Today's weight was 3lbs13oz so even without the good stuff, I am growing. Yeaahh!! And my nurse tonight even snuggled with me for a bit. Gosh, I am one lucky girl.

Well, gotta go to bed. Good, Good Night to You! Love Always, Lily


18 comments:

  1. LILLY.

    YOU LOOK SO PRETTY IN PINK, YOUR GETTING SO BIG. I CAN'T BELIEVE IT, YOU SURE DO HAVE A SPECIAL ANGEL UP IN HEAVEN PULLIN FOR YA SWEEITE. AND ALOT OF THEM DOWN HERE ALSO....YOUR SO AMAZING I HOPE ONE DAY TO MEET YOU LET YOU KNOW HOW PROUD OF YOU WE ALL ARE. MUCH LOVE LILLY

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  2. So glad to hear you are doing so well. I will stop by and see you after my shift on saturday. You look so cute in your hat!!

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  3. Little Lily,

    Sweet little girl, you made my night! I am so glad you are feeling better and had a great day!

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  4. Lily and Daddy Sean,
    I am a friend of Natalie Hastings, from your church. I have a little bitty baby girl that was born early, too. Her bed looked just like yours, and she liked to pull her tubes out, too. Those silly doctors think that you smart babies can't figure out how...but you do, don't you! You preemie-donnas know just what you want! Lily, I am so proud of how you are doing. You have some of the strongest lungs I've ever seen - good job! You keep working on your chores that Mommy and Daddy gave you. I know your Mommy will keep helping you, too. Sean, my husband and I are both pastors, so even though I know you have a great church family up there, please let me know if you ever want to talk with either of us. We haven't lived your journey, but we did have our own scary NICU journey. Hang in there. Lily, sweet dreams and, as Becca's nurses used to say, "Think chubby!"
    Peace,
    Nancy Hill

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  5. Lily your entrys make me cry and smile at the same time! I love following your story! Thanks for the GREAT news! Keep it up little girl!
    Love, Kelly Richmond from NKY

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  6. Lily..Count me in as one of those who keeps praying for you. I'm so glad to hear that you're doing so well- keep up the good work!!
    -Heather in NY

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  7. lily,
    you are doing so fantastic. What a fighter you are! You look great - i can see your little hand trying to get out of that blanket. I'm so happy that you and your sweet daddy are getting to spend more time together. We love you. Great work on the weight gain. Keep it up!

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  8. Hey Lily! I'm SO THANKFUL you are feeling so good! I am happy to hear how much progress you have had in the past week!
    I have never met you, but I was really great friends with your Mommy since 5th or 6th grade! And then we graduated together from High School. We actually had the same heart doctors growing up! We would always say we were heart buddies! Can you believe that?
    Well, I live in Orlando, Florida now, but was there for your Mommy's celebration of life last weekend! It was a beautiful celebration. But, I hope to come home to visit my family one day to meet you!
    Maybe one day when you are older, you and your daddy can come down here and I can take you to DISNEY WORLD! Wouldn't that be cool?
    Well, you keep resting up and getting big! I'm proud of you! Take care! And no more scares for your daddy! My husband said your daddy is one tough cookie!
    We love you!
    -Katie (Burnett) Townsend

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  9. lily, your are so beatiful!!!!!!we stopped by lastnight to say hi to your daddy but he wasnt home but mimi was and let me tell you she gives the best hugs ever!!!!!no wonder your doing so well.sophia and bella cant wait till you come home to play.you are in our prayers everynight.love, the pangallos

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  10. Hi Lily,

    I'm so happy to see you in some girly clothes :) Pretty in pink and stealing daddy's heart. You bring him such joy!!! I hope to make it in to see you tomorrow or Sunday...I can't wait to hold you and see how much you've grown. It's only been a week but you look so much bigger. Your family and friends are sooooo proud of you! Prayers, prayers, and more prayers...I love you sweet girl.

    Love,
    Aunt Alison

    P.s. Gwyn and Mike send their love too
    XOXOXOXOXO

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  11. Lily, you are a little beauty. I can't wait until you can get out and meet all of your adoring fans. Keep doing better and better. We love you.

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  12. Lily,

    You are awesome! Our love and affection for you grows every day. I know your mommy is looking down from heaven and smiling! She must be so proud of how you are doing. And we are proud of you too. Stay strong and keep fighting little angel!

    Love,
    Sandy, Clyde, Jessica and Austin

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  13. Lily,
    We are so glad to see that you are doing better! We just love reading your blog and seeing how you are growing stronger and stronger everyday. You are always in our prayers. :)

    Love,
    Tiffany and Tommy Gruen

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  14. There isn't anything more powerful than a parents love for their child! I am confident that it can move mountains, capture the moon and even heal the sick. Keep loving on that little angel she will be a chubby little cherub before you know it.

    Sending ALL of our Love form CALI

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  15. Lily, your Aunt Mary Joe from sunny, warm Florida has finally gotten the necessary help to follow your blog and also add comments. I am so proud of you and your dad....keep up the good work......I understand your are back to regular feedings.....I so look forward to reading of your continued progress....WAY TO GO GIRL!...love ya....Auntie MJ

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  16. Hi Lilly,

    I am a friend of your Aunt Mary Joe and I am helping Aunt Pitter get her account set up. Keep doing well.

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  17. Lily - You are so beautiful and I am so technologically challenged. I have to figure out how to send you a messagte.

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  18. Lily - I have tried to do this so often - You and your daddy have been doing such a good job, Keep it up. We are all anxious to see you at home and five you some in person loving.

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