Wednesday, April 29, 2009
Monday, April 27, 2009
Along with the reporter, came the paparazzi. I am not kidding, this lady had two cameras and they were going off like crazy. Not to mention, they were bigger than I am. So, after they took a zillion-billion photos, the nurses started doing my final assessments to make sure I could go home. Well, you read where I am blogging this from so you know how it went. Luckily, there wasn't much waiting from the time they gave us the "green light" and the time we were walked out of the hospital. I just made sure that they fed me and burped me and we were on our way.
I love car rides!! Well, I love sleeping in cars. They are sooo relaxing. We got home around 2pm and settled in. It is soo nice here. Daddy and Mimi even took me for a short walk but the sidewalks were pretty bumpy and I wasn't a big fan of that. I think Daddy will be using the Bjorn for a lot of our walks. I can't wait to use that thing because it is just like kangarooing. Daddy straps on the vest lookin' thingy and then places me in and secures it and off we go.
This evening was cool too. Grandma and Poppy came by to spend time with me. It's really great being here. Tomorrow will be our first full day at home and I have doctor's appointment later on this week. Nothing crazy, just a follow up appointment with my pediatrician. That's about it for the day. I gotta go play with Daddy and Mimi before I eat and go to bed. Goodnight everybody.
Much Love, Lily
Sunday, April 26, 2009
Thursday, April 23, 2009
Daddy and Mimi got to walk down with me and then they gave me a kiss and had to go wait in the waiting room until the doctors had done their thing. The whole ordeal only took about an hour and before I knew it I was waking up.
Man, that stuff they use to put you out really makes you wacky. Daddy was there shortly after they got me back to my bed and I was able to wake up a little bit for him but these drugs really make me tired and I slept most of the day. I tried to eat around 2 but was still so groggy that I didn't do so well. I was really hungry since I hadn't eaten all night and my throat was a little scratchy from the breathing tube they used during surgery and when Daddy gave me the bottle I went after it like it was the last bottle on the planet. One problem, my excitement mixed with the grogginess made me forget to breathe and I had a few bradycardia episodes. This happened on the first couple of feeds but I ate like a champ again at my night feeding. I only took 50 mLs but they are walking me slowly up to full feeds. If I can do that, they will take my IV out and it won't be long until they send me home.
Until then, the nurses are giving me a ton of love and are giving me tylenol for my discomfort. My incisions are only 2 cms a piece but they are pretty uncomfortable and I let out some good cries when they start to bother me. The docs say they won't be bothering me much longer and that I will never remember having the procedure when I grow up. I can handle that because right now, I wish I didn't have to have the surgery at all.
Anyway, thanks to all you awesome folks who have been praying for me. Daddy tells me about all the people who follow this blog and about all of you who are praying for us. He was telling me that sometimes the best gift you can give someone is as simple as saying a little prayer. So, thanks for all the gifts you've been sending our way. We love you all soo much!!
Well, I am gonna get some more sleep and am going to try to flush out the grogginess. Hopefully I wake up feeling somewhat like normal tomorrow. Daddy promised to be here first thing in the morning to give me tons of lovin. That's AWESOME! Goodnight rockstars!!
Love Always, Lily
Wednesday, April 22, 2009
Sunday, April 19, 2009
I guess you could say the weekend started for me on Thursday. Since Daddy wasn’t going to the gym in the morning, he stayed a little later than usual and read me two new books. One was "It’s Not Easy Being a Bunny" and "The Little Engine that Could". These were some really good stories. The first was about P.J. Funnybunny. It seems that P.J. isn’t happy being a bunny and tries to be all kinds of animals to see if he likes it better. He tries to be a moose, a possum, a pig, and a skunk. He didn’t try being a skunk very long at all. Daddy says P.J. was just having a little bit of an “identity crisis” but that he finally figures out that there isn’t anything wrong with being a bunny. In fact, the story ends with him going back home very happy that he is a bunny because he realizes that he was created to do the things bunnies do. Besides, like Daddy says, "the grass isn't greener on the other side. The grass is greenest where it is watered". Then the story about the little engine was really good too because it’s all about not letting your lack of size determine what you can and can't do. Daddy told me that the moral to the story is that I can do anything that I set my mind to and for which I am willing to work. Kinda like Tough Chicks, even though I am small and was born premature, I can do all the things that a regular term baby does and even more. Small and mighty, that's me!! I really like these kind of stories.
Daddy came and hung out with me Friday night and we had some visitors stop by. One of Daddy’s friends was in from out of town and hadn’t had the chance to meet me so they came by the hospital and we got to know eachother. I was wide awake and a little leery when Daddy placed me in the arms of a stranger. Especially when daddy had to give the “how to hold a baby” speech. Luckily, all Daddy’s buddy needed was a little guidance and I nestled right in. Daddy tells me that he and mommy have such an amazing network of friends and that he hopes that some day I have friends like this. I am sure I will.
Saturday was a beautiful day I am told. It’s hard to say from my crib but everyone here was saying how great it was outside. Daddy came over in the morning and then left around noon to go on a long bike ride. But he didn’t get out of here before I had the chance to spit up on him. Let me tell you, I got him good. I had just eaten like 100mLs and thought I’d give a little back. Don’t worry, I usually don’t spit up and usually only do it when I am trying to get rid of my food from the “other” end. Daddy came back after his ride and hung out for another few hours. We just snuggled, chatted and I napped a bit. Yea, it was pretty sweet.
To top off the weekend, Daddy came after church today and we spent much of the day together. I am eatting much larger volumes and they have even started fortifying the boob juice with protein so that I get the calories I need. Daddy calls it my protein shake. Like the ones he drinks when he gets done doing his training stuff (less the "jice" of course). He says that protein shakes can help to make you grow big and strong which sounds good to me, so keep 'em comin!! I am taking in 100mLs per feed and it blows Daddy's mind that I even have room in my belly for soo much milk. But, I am getting pretty good at making room for the new stuff as I eat, if you know what I mean. Daddy says it's a good thing he changes my diaper after I eat because I may lose my appetite if he did it before. Whatever!! Anyway, this protein stuff really does seem to be working great. I weighed in tonight at 6lbs 11oz and am 19.5inches long. It won't be too long before I crack the 7lbs mark.
Wednesday, April 15, 2009
Sunday, April 12, 2009
Thursday, April 9, 2009
So you are probably wondering, "WTH" (What the Heck!!). Well, let me tell you what happened. When they released me yesterday afternoon, I was perfectly OK. My belly was nice and soft to the touch and all my other tests looked great. So, they let me go. Later on in the evening my daddy and mimis noticed my belly was getting a little harder and that I was getting a little more touchy about them feeling my belly. Luckily, my first pediatrician appointment was this morning. Sidenote, my pediatrician is like the nicest lady ever. OK, back to my story. We get to the appointment and by this time my belly is really distended. Daddy told Dr. Fix that he has never seen my belly so large and they agreed that I should probably get some x-rays to see what was goin' on. You want to know the great part of my Dr's office? It's at the same place that Daddy works out and it also has a satelite campus for Children's Hospital. I am not too sure what the heck a satelite is but to get my x-ray, we just had to walk down the hall.
I am not the biggest fan of x-rays. I mean, who would like being stripped down to their underwear, placed on a cold dark x-ray table and then pinned down so you can't move while some poor technician takes your picture. Needless to say, I was not a happy camper. Once the doctors got a chance to look at the X-rays they decided to try a suppository to see if that made my belly go down. Well, the suppository definately worked from a pooping perspective but my belly still wasn't going down. At this point, Dr. Fix and the docs at Children's agreed that the best place for me to be was back at the RCNIC. So, here we are. Back in the same pod and the same bed.
We got back to the RCNIC around 3:30 and the doctors here did all of their assessments. I am not a fan of that either. I wish they would stop taking off my clothes to push on me. But daddy says that they only do it because they care about me and want to send me home for good next time. One thing that they did find is that I have a inguinal hernia and they think I got it when I was bearing down super hard to poo. Apparently, this is a fairly common occurence but the thing that stinks is that for girls, it requires surgery to fix. Now, don't go gettin all panicky on me. The doctors told daddy that if they can push the hernia back in place (which they did) most of the time surgery can wait until I am older and it is done as an outpatient procedure. Daddy told me that outpatient is just a way of saying I come to the hospital and go home the same day.
So the plan now is to have another berium enema test tomorrow to see if there are any strictures that have developed that were not able to be seen on the last test. The docs seem to think it has to be something anatomical going on instead of a food intolerance. I am really not looking forward to this test because the last one was not fun at all. So, please say a prayer for me and one for daddy to stay strong. I think we are holding up well but we still get a little discouraged from time to time.
I will keep you posted as to my progress. I love you all.
Wednesday, April 8, 2009
Sunday, April 5, 2009
Thursday, April 2, 2009
Hey everyone!! This week has been going great so far. The nurses and doctors started letting me eat more from the bottle and today they said that I could eat as much as I wanted from the bottle. So, guess what I have been doing. Thats right, I have been piggin out and eating like 50 mLs from the bottle every feed. Of course, Daddy has to stop about half way through so I can let out a couple of burps to make room for the rest but I am doing fantastic on the bottle. They have me on a mixture of donor milk and formula. It tastes pretty good and is gonna really help me put on the weight.
I can tell you one thing I don't like....prune juice!!! Yuck!! That stuff doesn't taste anything like formula or milk and it makes me go like crazy. I don't like that stuff at all. Daddy says going like crazy beats not going and that before too long we will get it down to a good balance so that I stay "regular" without being too "regular". Everything in moderation, I guess.
When Daddy was leaving for work today, the nurse asked him if I have taken the "Carseat Challenge" and he told them that I have not. What is the carseat challenge, you ask? This is something that the hospital does for all of the children who are getting ready to go home. They place the baby in the carseat, make sure it is sized correctly, and for about thirty minutes they watch them to see how they do. Daddy brought in my carseat tonight and tomorrow I am going to take the challenge. Wish me luck!! Daddy says he thinks I will do just fine and that he wouldn't be suprised to have me home in the next week or so. That would be totally sweet!!
So, since I am doing so well and they are letting me eat as much as I want from the bottle, I decided it would be a good idea to yank out my nose tube when the nurse wasn't watching. It is soo much easier to breath without that thing. I am down to one tube, the PICC, and then the sensors. The PICC should be coming out in the next day or so and hopefully that is the last of the IVs (especially the kind that go in your head).
Other than that, there isn't too much to report. I get to spend tons of time with my mimis and daddy comes by all the time. I am such a lucky girl. I'll blog with you all very soon.